Community & Support

We unfortunately do not have the capacity to support patients directly, but we can link you to a number of SFN community support systems that can.

It is understandable that a big theme of SFN communities can be despair due to the severe pain and lack of care this patient community can experience, but we ask that you stay mindful of the impact this might have on others.

If you are in crisis, please contact crisis services.

Our aim it to change how things are, to share our people have got treatment, and provide a roadmap for people to actually get the help and support they deserve.

SFN Action UK Discord: https://discord.gg/85JSrZNQ

Sjögren’s UK: https://sjogrensuk.org/